About the NET-PRO Study

• The NET-PRO study (Neuroendocrine Tumors - Patient-Reported Outcomes) is designed to address the following patient-identified research gaps:
  • To describe the symptoms and quality of life with different NET treatments.
  • To learn what patient and tumor factors influence the order that treatments are given.
  • To learn whether treatment order affects quality of life, symptoms and survival.
  • To help others conduct research on NETs and other rare diseases.

• This is an invitation-only study; research staff at particpating sites will invite patients to join this study.
• Up to 3100 patients across the US will participate in this study.
• This study is funded by the Patient-Centered Outcomes Research Institute (PCORI).
• The University of Iowa developed this website and is serving as the Coordinating Center for this study.